The Health Data Goldilocks Dilemma: Sharing? Privacy? Both?
September 18, 2019
2:10pm - 2:35pm
Mission City B1
On the one hand, sharing health information is essential for optimal clinical care, for powering medical discovery and for enabling health system transformation. On the other hand, the public is expressing greater concerns over the privacy of personal health data. This Goldilocks Dilemma has U.S. policymakers driving toward two seemingly conflicting goals: 1) broader data interoperability and data sharing, and 2) enhanced data privacy and data protection.
As is being discussed in TheHealthCareBlog series with the same title, this Health Data Goldilocks Dilemma has many tentacles: Federal/State privacy legislation; health IT tech, policy & interoperability; data for AI & machine learning; data for clinical research; ethical issues; compensating individuals for their data; health data business models & many others.
Deven & Vince will briefly describe the Goldilocks Health Data Dilemma and will provide an overview of 2 specific affected areas: 1) How are policy makers addressing health data privacy risks, 2) the impact on business models. Then they'll sit down for a fireside chat to discuss implications.